It wasn't the news Shailynn Taylor wanted to hear heading into SMA awareness month. 

Taylor was diagnosed with Spinal Muscular Atrophy(SMA) when she was a baby and has spent much of her life dealing with the symptoms that go along with it. 

She has met with many officials and politicians across the country for discussions on her condition during the last handful of years and even more so since Spinraza has become available in Canada as a form of treatment. However, the cost for each

All photos courtesy of Shailynn Taylor's Facebook page. dose for Taylor, who qualifies for a lower price point, is over $63,000 each time. 

Shortly after getting her first shot and noticing a significant difference in herself, her friends and family were able to gather enough funds to cover a second and third dose. Her parents called to make the appointment and start the process of having it administered but were told that wouldn't be possible. Once again, Taylor had another hurdle to jump over after finding ways around all the other obstacles shes faced since starting this mission of trying to save not only her own life but everyone else suffering from SMA. 

Normally you can't wipe the smile off Taylor's face, but this blow hit just a little too hard after feeling like they had accomplished what already seemed unimaginable. 

"I actually ended up deciding to come and spend the month of August in Moose Jaw because that's what I needed," explained Taylor. "I need the community behind me, the people who've supported me. I needed that constant reminder that I'm not alone in this and that there are people who are fighting beside me that believe in my life."

Taylor is living in Calgary while she completes her post-secondary education and was working as a probation officer, before having to scale back her responsibilities to focus on her health. 

It has been a busy summer for this young lady, she's had various doctors appointments, meetings with political leaders and fundraisers to attend to continue spreading her message. But like any other human beings, not to mention someone suffering from a rare condition, she said it's beginning to wear on her optimism. 

"This summer has been 100% devoted to my treatment, to rehab, to doctors appointments and test... it's been exhausting and it's really hard to keep going and keep fighting when it's roadblock after roadblock. It's not like I'm fighting for something small, I'm fighting for my life and when I have roadblock after roadblock it's hard not to feel like your life isn't worth the work."

But only people who know Taylor, know that she's a fighter. For everything she's been through, she's found a way to continue to be a warrior and fight for all people with SMA to one day have access to treatment, and hopefully at a much lower cost. 

"I can't sit back and watch those important lives go by the weigh side and so until I can't fight anymore I will fight for everyone with SMA. Not just babies, not just kids, but adults with SMA who want to have a life as well... who wants to create a family and a career and not be scared that one day they will catch a flu that will kill them."

Taylor's friends and family use the Hope For Shailynn Taylor facebook page to keep everyone up to date on her journey as well as post fundraiser and events with proceeds going to funding treatment. The next fundraiser is a cabaret taking place this October.